The new Brad Pitt film "The Curious Case of Benjamin Button," in which the title character is born old and grows younger, opens tomorrow. The idea got me thinking about the genetic disorder progeria, which causes children to age rapidly and usually reach the end of their lives in their teens. Two outspoken kids with progeria are Hayley Okines of the U.K. and Ashley Hegi of the U.S. May they both live longer than average. I once saw a young child with progeria (age 2 or 3, if I had to guess, in Connecticut in about 1980) being carried by her father: it was less like she was being held by him, as she was perching attentively on his forearm.
that is so sweet!
ReplyDeleteThey are beautiful!
ReplyDeleteI really feel sorry for them.
ReplyDeleteit just hurts me to see that kind of things, and I can't help it, my tears are falling down, and all that I can feel is guilt, because those kids won't ever have a normal life, and they're not complaining, they're just fighting to make it through each day even if they know there is no medication to help them, it's just so unfair.
ReplyDeletei feel so horrible for these kids and how weak or brittle their arms and legs must feel. i couldnt imagine having such a short time to live too. im holding back tears while staring at the bottom pic
ReplyDeleteWE LOVE YOU HANA <3 R.I.P <3 You will ALWAYS be in our hearts : ) <3 & we will pray for you . <3 <3 <3
ReplyDeleteOmg they're so cute :')
ReplyDeletethat hurts me! my tears are falling down my eyes and i we cant make nothing to help them! thats so hard
they are so sweet im thankfull for my life
ReplyDelete